Desires vs. conditions: A qualitative study exploring the factors affecting the place of death of child with cancer in Turkey

Bingol H., Aydin A., Kebudi R., Umac E. H., Koc B., Yildirim Ü. M., ...Daha Fazla

EUROPEAN JOURNAL OF CANCER CARE, cilt.31, sa.6, 2022 (SCI-Expanded) identifier identifier identifier

  • Yayın Türü: Makale / Tam Makale
  • Cilt numarası: 31 Sayı: 6
  • Basım Tarihi: 2022
  • Doi Numarası: 10.1111/ecc.13703
  • Dergi Adı: EUROPEAN JOURNAL OF CANCER CARE
  • Derginin Tarandığı İndeksler: Science Citation Index Expanded (SCI-EXPANDED), Social Sciences Citation Index (SSCI), Scopus, Academic Search Premier, Biotechnology Research Abstracts, CINAHL, EMBASE, MEDLINE, Psycinfo
  • Anahtar Kelimeler: cancer, children, death, end of life, place, qualitative, OF-LIFE CARE, END, HOME, PREFERENCES, ADOLESCENT, LOCATION, PARENTS
  • İstanbul Üniversitesi Adresli: Evet

Özet

Objective The purpose of this study was to describe factors affecting the place of death of children with cancer at the end of life. Methods The descriptive phenomenological approach was used. Eighteen mothers who lost their children to cancer participated in in-depth interviews. Data were analysed using MAXQDA software version. Codes and categories were developed inductively from participants' narratives. Results The factors affecting the place of death of children were categorised into two main themes: (1) desires and (2) conditions. Most of the mothers reported that their deceased children wanted to be with their families at the end of life and they wanted to go home. The conditions related to health services were defined as the barriers to the death of their children in the places of death preferred by the mothers. Conclusion The desire to be close to the child was the main factor affecting the parents' decisions. The findings revealed the prevailing circumstances in the death place decision beyond parental desires. These were the child's health conditions, physical conditions of hospitals, and the lack of home care and paediatric palliative care services, which were factors related to the system, and the lack of other options for parents.