A novel assessment tool for clinical care of patients with autoinflammatory disease: juvenile autoinflammatory disease multidimensional assessment report

KONUKBAY, D.; GATTORNO, M.; YILDIZ, Dilek; FRENKEL, J.; ACIKEL, C.; Sozeri, B.; Makay, B.; AYAZ, NURAY; Barut, K.; Kisaarslan, A.; Bilginer, Y.; KARAMAN, D.; Peru, H.; SIMSEK, Deniz; AYDOG, O.; Unsal, E.; Gunduz, Z.; FIDANCI, B.; KONE-PAUT, I.; Kasapcopur, Özgür; RAVELLI, A.; Ozen, S.; DEMIRKAYA, E.

A novel assessment tool for clinical care of patients with autoinflammatory disease: juvenile autoinflammatory disease multidimensional assessment report

KONUKBAY D., GATTORNO M., YILDIZ D., FRENKEL J., ACIKEL C., Sozeri B., ...More

CLINICAL AND EXPERIMENTAL RHEUMATOLOGY, vol.34, no.6, 2016 (SCI-Expanded, Scopus)

Publication Type: Article / Article
Volume: 34 Issue: 6
Publication Date: 2016
Journal Name: CLINICAL AND EXPERIMENTAL RHEUMATOLOGY
Journal Indexes: Science Citation Index Expanded (SCI-EXPANDED), Scopus
Keywords: auto-inflammatory disease, outcome instrument, multidimensional, proxy report, familial Mediterranean fever, FAMILIAL MEDITERRANEAN FEVER, QUALITY-OF-LIFE, INITIAL VALIDATION, HEALTH, SEVERITY, QUESTIONNAIRE, CHILDREN, PAIN
Istanbul University Affiliated: Yes

Abstract

Objective. To develop and test a new multidimensional questionnaire for assessment of children with auto-inflammatory disease (AID) such as FMF, PFAPA, HIDS, TRAPS in standard clinical care.