A novel assessment tool for clinical care of patients with autoinflammatory disease: juvenile autoinflammatory disease multidimensional assessment report

KONUKBAY, D.; GATTORNO, M.; YILDIZ, Dilek; FRENKEL, J.; ACIKEL, C.; Sozeri, B.; Makay, B.; AYAZ, NURAY; Barut, K.; Kisaarslan, A.; Bilginer, Y.; KARAMAN, D.; Peru, H.; SIMSEK, Deniz; AYDOG, O.; Unsal, E.; Gunduz, Z.; FIDANCI, B.; KONE-PAUT, I.; Kasapcopur, Özgür; RAVELLI, A.; Ozen, S.; DEMIRKAYA, E.

A novel assessment tool for clinical care of patients with autoinflammatory disease: juvenile autoinflammatory disease multidimensional assessment report

KONUKBAY D., GATTORNO M., YILDIZ D., FRENKEL J., ACIKEL C., Sozeri B., ...Daha Fazla

CLINICAL AND EXPERIMENTAL RHEUMATOLOGY, cilt.34, sa.6, 2016 (SCI-Expanded, Scopus)

Yayın Türü: Makale / Tam Makale
Cilt numarası: 34 Sayı: 6
Basım Tarihi: 2016
Dergi Adı: CLINICAL AND EXPERIMENTAL RHEUMATOLOGY
Derginin Tarandığı İndeksler: Science Citation Index Expanded (SCI-EXPANDED), Scopus
Anahtar Kelimeler: auto-inflammatory disease, outcome instrument, multidimensional, proxy report, familial Mediterranean fever, FAMILIAL MEDITERRANEAN FEVER, QUALITY-OF-LIFE, INITIAL VALIDATION, HEALTH, SEVERITY, QUESTIONNAIRE, CHILDREN, PAIN
İstanbul Üniversitesi Adresli: Evet

Özet

Objective. To develop and test a new multidimensional questionnaire for assessment of children with auto-inflammatory disease (AID) such as FMF, PFAPA, HIDS, TRAPS in standard clinical care.