Palliative and end-of-life care for children with diffuse intrinsic pontine glioma: results from a London cohort study and international survey

van Zanten S. E. M. V., van Meerwijk C. L. L. I., Jansen M. H. A., Twisk J. W. R., ANDERSON A., Coombes L., ...Daha Fazla

NEURO-ONCOLOGY, cilt.18, sa.4, ss.582-588, 2016 (SCI-Expanded) identifier identifier identifier

  • Yayın Türü: Makale / Tam Makale
  • Cilt numarası: 18 Sayı: 4
  • Basım Tarihi: 2016
  • Doi Numarası: 10.1093/neuonc/nov250
  • Dergi Adı: NEURO-ONCOLOGY
  • Derginin Tarandığı İndeksler: Science Citation Index Expanded (SCI-EXPANDED), Scopus
  • Sayfa Sayıları: ss.582-588
  • İstanbul Üniversitesi Adresli: Evet

Özet

Background. More than 90% of patients with diffuse intrinsic pontine glioma (DIPG) will die within 2 years of diagnosis. Patients deteriorate rapidly during the disease course, which severely impairs their quality of life. To date, no specific research on this clinically important subject has been conducted. This study aimed to compile an inventory of symptoms experienced, interventions applied, and current service provision in end-of-life care for DIPG.