A National Registry of Thalassemia in Turkey: Demographic and Disease Characteristics of Patients, Achievements, and Challenges in Prevention

Aydinok, Yesim; Oymak, Yesim; Atabay, Berna; Aydogan, Gonul; Yesilipek, Akif; Unal, Selma; Kilinc, Yurdanur; Oflaz, Banu; Akin, Mehmet; Vergin, Canan; Evim, Melike; Caliskan, Umran; Unal, Sule; Bay, Ali; Kazanci, Elif; Ileri, Talia; Atay, Didem; Patiroglu, Turkan; Kahraman, Selda; Soker, Murat; Akcan, Mediha; Akdeniz, Aydan; Buyukavci, Mustafa; Alanoglu, Guchan; Bor, Ozcan; Soyer, Nur; Karadas, Nihal; Uysalol, Ezgi; Turker, Meral; Akcay, Arzu; Ocak, Suheyla; Gunes, Adalet; Tokgoz, Huseyin; Unal, Elif; Tiftik, Naci; Karakas, Zeynep

doi:10.4274/tjh.2017.0039

A National Registry of Thalassemia in Turkey: Demographic and Disease Characteristics of Patients, Achievements, and Challenges in Prevention

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Aydinok Y., Oymak Y., Atabay B., Aydogan G., Yesilipek A., Unal S., ...More

TURKISH JOURNAL OF HEMATOLOGY, vol.35, no.1, pp.12-18, 2018 (SCI-Expanded)

Publication Type: Article / Article
Volume: 35 Issue: 1
Publication Date: 2018
Doi Number: 10.4274/tjh.2017.0039
Journal Name: TURKISH JOURNAL OF HEMATOLOGY
Journal Indexes: Science Citation Index Expanded (SCI-EXPANDED), Scopus, TR DİZİN (ULAKBİM)
Page Numbers: pp.12-18
Keywords: Thalassemia, Hemoglobinopathies, Splenectomy, Registries, Iron chelators, beta-thalassemia mutations, Turkey, BETA-THALASSEMIA, AEGEAN REGION, PROLONGED SURVIVAL, IRON-DEFICIENCY, HEMOGLOBIN-S, ANEMIA, POPULATION, FREQUENCY, CHILDREN, SOUTH
Istanbul University Affiliated: Yes

Abstract

Objective: The Turkish Society of Pediatric Hematology set up a National Hemoglobinopathy Registry to demonstrate the demographic and disease characteristics of patients and assess the efficacy of a hemoglobinopathy control program (HCP) over 10 years in Turkey.