A National Registry of Thalassemia in Turkey: Demographic and Disease Characteristics of Patients, Achievements, and Challenges in Prevention

Aydinok, Yesim; Oymak, Yesim; Atabay, Berna; Aydogan, Gonul; Yesilipek, Akif; Unal, Selma; Kilinc, Yurdanur; Oflaz, Banu; Akin, Mehmet; Vergin, Canan; Evim, Melike; Caliskan, Umran; Unal, Sule; Bay, Ali; Kazanci, Elif; Ileri, Talia; Atay, Didem; Patiroglu, Turkan; Kahraman, Selda; Soker, Murat; Akcan, Mediha; Akdeniz, Aydan; Buyukavci, Mustafa; Alanoglu, Guchan; Bor, Ozcan; Soyer, Nur; Karadas, Nihal; Uysalol, Ezgi; Turker, Meral; Akcay, Arzu; Ocak, Suheyla; Gunes, Adalet; Tokgoz, Huseyin; Unal, Elif; Tiftik, Naci; Karakas, ZEYNEP

doi:10.4274/tjh.2017.0039

A National Registry of Thalassemia in Turkey: Demographic and Disease Characteristics of Patients, Achievements, and Challenges in Prevention

Aydinok Y., Oymak Y., Atabay B., Aydogan G., Yesilipek A., Unal S., ...Daha Fazla

TURKISH JOURNAL OF HEMATOLOGY, cilt.35, sa.1, ss.12-18, 2018 (SCI-Expanded, Scopus, TRDizin)

Yayın Türü: Makale / Tam Makale
Cilt numarası: 35 Sayı: 1
Basım Tarihi: 2018
Doi Numarası: 10.4274/tjh.2017.0039
Dergi Adı: TURKISH JOURNAL OF HEMATOLOGY
Derginin Tarandığı İndeksler: Science Citation Index Expanded (SCI-EXPANDED), Scopus, TR DİZİN (ULAKBİM)
Sayfa Sayıları: ss.12-18
Anahtar Kelimeler: Thalassemia, Hemoglobinopathies, Splenectomy, Registries, Iron chelators, beta-thalassemia mutations, Turkey, BETA-THALASSEMIA, AEGEAN REGION, PROLONGED SURVIVAL, IRON-DEFICIENCY, HEMOGLOBIN-S, ANEMIA, POPULATION, FREQUENCY, CHILDREN, SOUTH
İstanbul Üniversitesi Adresli: Evet

Özet

Objective: The Turkish Society of Pediatric Hematology set up a National Hemoglobinopathy Registry to demonstrate the demographic and disease characteristics of patients and assess the efficacy of a hemoglobinopathy control program (HCP) over 10 years in Turkey.