Health related quality of life measure in systemic pediatric rheumatic diseases and its translation to different languages: an international collaboration


Moorthy L. N., Roy E., Kurra V., Peterson M. G. E., Hassett A. L., Lehman T. J. A., ...Daha Fazla

PEDIATRIC RHEUMATOLOGY, cilt.12, 2014 (SCI-Expanded) identifier identifier identifier

  • Yayın Türü: Makale / Tam Makale
  • Cilt numarası: 12
  • Basım Tarihi: 2014
  • Doi Numarası: 10.1186/1546-0096-12-49
  • Dergi Adı: PEDIATRIC RHEUMATOLOGY
  • Derginin Tarandığı İndeksler: Science Citation Index Expanded (SCI-EXPANDED), Scopus
  • İstanbul Üniversitesi Adresli: Evet

Özet

Background: Rheumatic diseases in children are associated with significant morbidity and poor health-related quality of life (HRQOL). There is no health-related quality of life (HRQOL) scale available specifically for children with less common rheumatic diseases. These diseases share several features with systemic lupus erythematosus (SLE) such as their chronic episodic nature, multi-systemic involvement, and the need for immunosuppressive medications. HRQOL scale developed for pediatric SLE will likely be applicable to children with systemic inflammatory diseases.